Update:
It’s been a rough last couple of days. On Sunday Amora started developing a rash on her chest. She complained that is felt weird and developed a nervous tick scratching, or picking at her skin. That evening the resident doctor and nurse did not seem concerned. (It was concerning to me). They gave her benedryl and everything got worse. She reacted like she was on a bad drug trip… confused and picking at herself like her skin was crawling. She made her lips bleed. It was absolutely terrifying. We called the doctor and the nurse and they just brushed it off as a normal reaction to benedryl sometimes. I was so angry. We ended up giving her some lorazepam and that helped her sleep a little.
The next morning, Monday, she woke up shaking and wanting pancakes. We got her pancakes and her chest looked worse. The day time nurse came in and she showed extreme care and advocated for Amora. She got a team of nurses in Amoras room and they acted quick. They quickly determined that her port dressing needed to be removed and deaccessed. Amora started running a fever. The staff quickly tried to get ahold of the oncologist who is in surgery and I felt so helpless. What’s going on?? It’s a bacterial infection, I’m so worried it would spread… Lord please get the oncologist in here…
Finally oncologist came in and assessed the situation. We had IV team requested stat and started two forms of antibiotics- cephapim and vancomycin. They took her blood and found bacteria locally. They are waiting for the cultures to come back to determine what type of bacteria we are fighting against.
In the mean time we have been trying to keep her temp down and monitoring her. We just had infectious disease come in and assess her condition. If the antibiotics don’t clear it up, she will have to get her port removed in surgery again. This will mean her chemo treatment might get pushed longer.
We are just waiting. Praying.
As I broke down yesterday I felt so weak. I felt so helpless and didn’t understand this hand we were given. My poor girl, I hate seeing her like this. This fear seeps into my soul. Kyle grabbed my hand and said don’t let the devil bring you down: you are strong. Right then and there I felt strong. AMORA STRONG. The devil is not welcome here. Gods got us. The devil is not welcome here!!
“Do not fear for I am with you; do not be dismayed, for I am your God; I will strengthen you and help you, I will uphold you with my righteous right hand” Isaiah 41:10
“Peace I leave with you; My peace I give you. I do not give you as the world gives. Do not let your hearts be troubled and do not be afraid” John 14:27
Dear Lord, please provide for a miracle. I know you are the all healer and I ask for this infection to be eradicated from her body. God this has been so rough and I ask that you remind us everyday that you are bigger than everything. I ask that you give her comfort. I Pray that we are given the right path forward and that You, my God, give us strength to endure , and faith that it will get better. Still waiting for her smile Lord, please help her get better.
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